Tuesday, 19 February 2008

Nebulised Colomycin

Following an enquiry by a parent, has anyone got any experience of administering Colomycin via a nebuliser, for the treatment of pseudomonas? Any guidelines or advice would be gratefully received since the parent has had conflicting advice so far from her medical team. Please get in touch via this blog or by using the ACT email: support@ACTfortrachykids.com

Many thanks
Amanda

Thursday, 14 February 2008

Clario suction pump

Does anyone have any info on the Medela Clario suction machine? We are hoping to try one out with Sam, to see if it is any quieter, and lighter, for school. Are they offering free trials? I have tried their website, but it is not much help.
Thanks
Julie

Wednesday, 6 February 2008

I think this is the first posting for 2008! Just to say, please do not give up if you have problems registering on this Blog or can't get it to work. Please contact Amanda on 01823 698398 or email support@actfortrachykids.com and we will try to help sort out any difficulties. If we had lots of parents using this Blog it would be a really useful resource to exchange ideas and to offer mutual support etc but it will not be much use if only a few use it. Do look back over previous posts to see if there is anything which would be relevant to you and add a comment if you feel able to!
All the best for now, Amanda

Monday, 31 December 2007

HAPPY NEW YEAR

Don't forget those of you who want to use the caravan:

BOOKING STARTS from 10 am on FRIDAY 4TH JANUARY 2008

Click onto the Caravan ICON at the top of our home page for details.

Mary's number for booking

01245 351702


Happy New Year to all of you and may 2008 bring the best of health, happiness and good fortune to each and every one of you.

Tuesday, 4 December 2007

CHRISTMAS AND THE NEW YEAR PERIOD

First of all I would like to wish you all the best wishes for the winter season. Whether you have celebrated Eid, Dwali, or are going to celebrate Hanuka the Christmas and New Year period is one where most of us like to celebrate. However it is also a time when many factories and medical supply distributors slow down or completely close down.

Don't be caught out, without going mad and stockpiling, just be wise and plan ahead for what you need not just for the Christmas week but for the first 2-3 weeks in January as well.

Take it from somebody who has been there and worn the T shirt. With a combination of the festive holidays, high levels of sickness and the bad weather often encountered in January, supplies can get a bit 'tight'!!.

Wishing you all the very best of health, happiness and good fortune

June

Newsletter Editor

Monday, 12 November 2007

Portable humidifiers

Hi Folks! Can anyone recommend a good, small, lightweight humidifier which would be suitable for when parents are travelling. Many parents have a humidifier in their child's room, but these are often rather bulky for putting in the car when going away. Any suggestions gratefully received.

Monday, 8 October 2007

NEWSLETTER CHRISTMAS 2007 EDITION

PLEASE send me your views, problems helpful hints and stories to help me compile our newsletter. How about sharing this years holiday experiences. You can contact me via Amanda our Secretary on support@actfortrachykids.com or by letter phone or personal email as printed on the back page of the ACT Newsletters.

Hope that you had a great Summer.

Every best wish

June Newsletter Editor.