Naidex 2008

Hello all,

I found this link to the Naidex exhibition at the NEC.

The show is for the public as well as professional users / buyers and will be exhibiting all kinds of medical and nurisng aids etc.

The show runs between 29th April and the 1st of May.

The shows website is: http://www.naidex.co.uk/

Looking to attend myself.

Regards to all,

Kevin Ford.

Holiday Hotel with Nurse Support

Our son Paul is profoundly disabled and has a tracheostomy. Travelling away from home can be a nightmare. So holidays are not always as relaxing as they should be. We could fill a truck with the additional equipment we have to carry around as many of you will appreciate.

Steve and Denise are a couple who have started a Bed and Breakfast Hotel in Torquay. One of their rooms has been adapted with a hoist , a rise and fall bed with sides and wetfloor showerroom. Denise is a trained nurse with experience of caring for trachy children and cared for Paul and many other trachy kids when she lived in the Kettering area.

She now offers this support at her Hotel. During our stay Paul was cared for by Denise allowing my wife and I to have our own time to go out in the evening or for the whole day - and to have that all important lie in. Her husband Steve provides a wicked breakfast in the morning and good company over a couple of drinks in the evening.

Have a look at their website for info: http://www.crowndalehotel.co.uk/

Nebulised Colomycin

Following an enquiry by a parent, has anyone got any experience of administering Colomycin via a nebuliser, for the treatment of pseudomonas? Any guidelines or advice would be gratefully received since the parent has had conflicting advice so far from her medical team. Please get in touch via this blog or by using the ACT email: support@ACTfortrachykids.com

Many thanks
Amanda

Clario suction pump

Does anyone have any info on the Medela Clario suction machine? We are hoping to try one out with Sam, to see if it is any quieter, and lighter, for school. Are they offering free trials? I have tried their website, but it is not much help.
Thanks
Julie

I think this is the first posting for 2008! Just to say, please do not give up if you have problems registering on this Blog or can't get it to work. Please contact Amanda on 01823 698398 or email support@actfortrachykids.com and we will try to help sort out any difficulties. If we had lots of parents using this Blog it would be a really useful resource to exchange ideas and to offer mutual support etc but it will not be much use if only a few use it. Do look back over previous posts to see if there is anything which would be relevant to you and add a comment if you feel able to!
All the best for now, Amanda

HAPPY NEW YEAR

Don't forget those of you who want to use the caravan:

BOOKING STARTS from 10 am on FRIDAY 4TH JANUARY 2008

Click onto the Caravan ICON at the top of our home page for details.

Mary's number for booking

01245 351702


Happy New Year to all of you and may 2008 bring the best of health, happiness and good fortune to each and every one of you.

CHRISTMAS AND THE NEW YEAR PERIOD

First of all I would like to wish you all the best wishes for the winter season. Whether you have celebrated Eid, Dwali, or are going to celebrate Hanuka the Christmas and New Year period is one where most of us like to celebrate. However it is also a time when many factories and medical supply distributors slow down or completely close down.

Don't be caught out, without going mad and stockpiling, just be wise and plan ahead for what you need not just for the Christmas week but for the first 2-3 weeks in January as well.

Take it from somebody who has been there and worn the T shirt. With a combination of the festive holidays, high levels of sickness and the bad weather often encountered in January, supplies can get a bit 'tight'!!.

Wishing you all the very best of health, happiness and good fortune

June

Newsletter Editor