Friday 29 February 2008

Holiday Hotel with Nurse Support



Our son Paul is profoundly disabled and has a tracheostomy. Travelling away from home can be a nightmare. So holidays are not always as relaxing as they should be. We could fill a truck with the additional equipment we have to carry around as many of you will appreciate.


Steve and Denise are a couple who have started a Bed and Breakfast Hotel in Torquay. One of their rooms has been adapted with a hoist , a rise and fall bed with sides and wetfloor showerroom. Denise is a trained nurse with experience of caring for trachy children and cared for Paul and many other trachy kids when she lived in the Kettering area.


She now offers this support at her Hotel. During our stay Paul was cared for by Denise allowing my wife and I to have our own time to go out in the evening or for the whole day - and to have that all important lie in. Her husband Steve provides a wicked breakfast in the morning and good company over a couple of drinks in the evening.


Have a look at their website for info: http://www.crowndalehotel.co.uk/


Tuesday 19 February 2008

Nebulised Colomycin

Following an enquiry by a parent, has anyone got any experience of administering Colomycin via a nebuliser, for the treatment of pseudomonas? Any guidelines or advice would be gratefully received since the parent has had conflicting advice so far from her medical team. Please get in touch via this blog or by using the ACT email: support@ACTfortrachykids.com

Many thanks
Amanda

Thursday 14 February 2008

Clario suction pump

Does anyone have any info on the Medela Clario suction machine? We are hoping to try one out with Sam, to see if it is any quieter, and lighter, for school. Are they offering free trials? I have tried their website, but it is not much help.
Thanks
Julie

Wednesday 6 February 2008

I think this is the first posting for 2008! Just to say, please do not give up if you have problems registering on this Blog or can't get it to work. Please contact Amanda on 01823 698398 or email support@actfortrachykids.com and we will try to help sort out any difficulties. If we had lots of parents using this Blog it would be a really useful resource to exchange ideas and to offer mutual support etc but it will not be much use if only a few use it. Do look back over previous posts to see if there is anything which would be relevant to you and add a comment if you feel able to!
All the best for now, Amanda