Could anyone give some advice on transferring to a booster car seat (the full seat rather than the cushion) with a small 5 year old child. The usual car seat belt crosses very near to the trachy tube so any ideas for preventing the seat belt rubbing against or near the tube would be gratefully received. If anyone can recommend a particular car seat over another, it would be useful.
Many thanks!!
Amanda
Wednesday, 2 April 2008
Sunday, 16 March 2008
Comments and new Pop Up Window
Thanks Julie for all your recent comments. Everyone should now see a Pop Up Window appear which will show all comments relative the Post concerned. You will also now also be able to see the original 'Post' behind the window. Any new comment can also be entered in this Pop Up Window which should make things easier for all.
Please let me know if there is anything you would like changing on the Blog to make functioning better.
Webmaster
Please let me know if there is anything you would like changing on the Blog to make functioning better.
Webmaster
Wednesday, 5 March 2008
Naidex 2008
Hello all,
I found this link to the Naidex exhibition at the NEC.
The show is for the public as well as professional users / buyers and will be exhibiting all kinds of medical and nurisng aids etc.
The show runs between 29th April and the 1st of May.
The shows website is: http://www.naidex.co.uk/
Looking to attend myself.
Regards to all,
Kevin Ford.
I found this link to the Naidex exhibition at the NEC.
The show is for the public as well as professional users / buyers and will be exhibiting all kinds of medical and nurisng aids etc.
The show runs between 29th April and the 1st of May.
The shows website is: http://www.naidex.co.uk/
Looking to attend myself.
Regards to all,
Kevin Ford.
Friday, 29 February 2008
Holiday Hotel with Nurse Support


Our son Paul is profoundly disabled and has a tracheostomy. Travelling away from home can be a nightmare. So holidays are not always as relaxing as they should be. We could fill a truck with the additional equipment we have to carry around as many of you will appreciate.
Steve and Denise are a couple who have started a Bed and Breakfast Hotel in Torquay. One of their rooms has been adapted with a hoist , a rise and fall bed with sides and wetfloor showerroom. Denise is a trained nurse with experience of caring for trachy children and cared for Paul and many other trachy kids when she lived in the Kettering area.
She now offers this support at her Hotel. During our stay Paul was cared for by Denise allowing my wife and I to have our own time to go out in the evening or for the whole day - and to have that all important lie in. Her husband Steve provides a wicked breakfast in the morning and good company over a couple of drinks in the evening.
Have a look at their website for info: http://www.crowndalehotel.co.uk/
Tuesday, 19 February 2008
Nebulised Colomycin
Following an enquiry by a parent, has anyone got any experience of administering Colomycin via a nebuliser, for the treatment of pseudomonas? Any guidelines or advice would be gratefully received since the parent has had conflicting advice so far from her medical team. Please get in touch via this blog or by using the ACT email: support@ACTfortrachykids.com
Many thanks
Amanda
Many thanks
Amanda
Thursday, 14 February 2008
Clario suction pump
Does anyone have any info on the Medela Clario suction machine? We are hoping to try one out with Sam, to see if it is any quieter, and lighter, for school. Are they offering free trials? I have tried their website, but it is not much help.
Thanks
Julie
Thanks
Julie
Wednesday, 6 February 2008
I think this is the first posting for 2008! Just to say, please do not give up if you have problems registering on this Blog or can't get it to work. Please contact Amanda on 01823 698398 or email support@actfortrachykids.com and we will try to help sort out any difficulties. If we had lots of parents using this Blog it would be a really useful resource to exchange ideas and to offer mutual support etc but it will not be much use if only a few use it. Do look back over previous posts to see if there is anything which would be relevant to you and add a comment if you feel able to!
All the best for now, Amanda
All the best for now, Amanda
Subscribe to:
Posts (Atom)