I attended a research group this week into children's community nursing services. It is a joint venture being run by the University of Central Lancashire and University of Bristol. They invited parents (and some of the children they cared for) to attend and give their views about what is good and bad about the service in their area. These groups are being held across the country and most pct's are taking part. the aim is to provide a framework for community children's nursing services - and other NHS services. If it works, it should mean an end to the postcode lottery as all trusts will provided the same care. I mean, if one county can manage to provide a quality service to it's patients, why can't others! I'll inform you when I get the results of the study.
Julie
6 comments:
Julie
That would be really useful and would be great if it did eleminate the postcode lottery. We certainly need more help in Stoke.
Denise
Hi Julie,
That sounds really interesting. Don't think our postcode has ever been even entered into the lottery in the first place! Our CCN service is great, but seems to think that it's main role is to teach and support parents - respite - what's that?????
Laura
Laura
Hi Laura,
If your having trouble with getting respite in the Newcastle area I suggest you ring up Cath.Barnes(Hazelrigg - Committee)
She will talk you through it, - you have to be assertive as in anything you want, but Cath has been there and worn the teashirt on more than one occasion, be guided by her.
Go for it
June
Thanks for that June. To be honest I already know that there is nothing locally that meets my needs - I want Dominic cared for in his own home, rather than "shared care". We've tried the local agency used by Social Services, and I was not happy with the staff they provided. Would never trust them to care for Dominic. The CCN provide short term Health Care Assistants, until Social Services find a suitable alternative. They've always been fantastic.
Problem is, Social Services have never managed to find a suitable service for us.
There is a lot of work at the moment in to improving short break services locally, and I've fed into this (and bumped into Cath at the conference too!). Hope they find something soon - Andrew and I would love a night out!
I feel from reading this that we are very lucky here in warwickshire (don't all move here!). I get respite one evening per month from carers on the CCN team - and they even look after James! So John and I get a night out. Sam also goes around once a month to a respite home in Coventry for an evening or sometimes a weekend.
Julie
That's exactly what I'd like - respite from the CCN team. I realised at the last ACT agm that we were not well served here when the lovely Diana Nurse who looked after Dominic in the Creche said if we lived in Leicester we'd get quite a few hours respite by a Diana Nurse a week. Not many areas in the country are covered by Diana nurses though.
We accessed the local children's hospice while Dominic was on CPAP/ oxygen/ overnight feeding pump. But now we "just" have a trachy, we no longer meet their criteria. That's a positive though! Think we were only ever referred as there was nothing else that suited.
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