Saturday, 30 May 2009

Good news!

Just wanted to let everyone know that Sam was successfully decannulated this morning. He was capped for 24 hours then took the tube out himself this morning - he just wanted his speaking valve back! At the moment he has the speaking valve taped over his stoma. He still appears a little confused as he has lived most of his life with a trachy, but no problems with breathing or oxygen saturations. the doctors just want to keep him overnight for monitoring then he should hopefully be discharged tomorrow morning. I can't believe this day has come after we hoped and prayed for it so much - it's not quite sunk in yet and I have to admit to being pretty apprehensive when they decided to take the trachy out this morning, I felt pretty sick. But everything seems to be fine - I'm looking forward to being able to leave all those bags at home!! Just imagine, only having to take a book bag and a lunch box to school every day ;)

2 comments:

Newsletter editor said...

So pleased for you Julie. Hope everything continues to progress smoothly. This will be one weekend that the family will remember.

Every best wish to you all.

June

ACT Secretary said...

Hi Julie

Just wanted to say a HUGE and very belated congratulations to you and Sam for a successful decannulation. I expect by now you have become more used to tube-free life and hope that things are a little easier for you all now. Do you still listen to Sam when he's asleep at night? I have to admit that I still listen out for my son's breathing if he has a bad cold or suddenly sounds funny, and he has been decannulated now for 12 years - how sad am I!!! Thanks for sharing your good news with us all.
Amanda